I don’t know

I just don’t know anymore. I don’t want to stress anymore. I don’t want to worry anymore. I don’t want to care anymore. I just don’t want to anymore.

My girl went to her therapy yesterday. It was the first in-person session with her therapist since the virus. She also had her first group therapy. I will admit I was very worried that she would not go. I will also admit I was very scared that if she did not go, I would have to do something about it. I’m not sure what, but something would have had to happen. While my logical brain tells me it’s time for her to leave, my emotional mom mind tells me that is the worst possible thing at this point. And there really is no in-between, at least as I see it.

Back to the therapy. We, me and my husband, were sitting outside when our girl got home. It was later in the evening and she was hungry so she went in the house to get some food. She came back out and I began asking about how things went. It is a very slow process to get her to talk at times and I know I’m not always getting “the full story” so to speak. She didn’t seem overly thrilled about either the individual or the group therapy. She told me she promised her therapist she would commit to three months of the individual/group therapy. She promised not to go ghost. One thing that seemed to especially annoy her about the group part, is that the participants are not allowed to engage in any personal contact. She said it could create drama in the group and what if two people in the group are in crisis mode at the same? I won’t pretend to completely understand all of it. I get that they don’t want or need additional drama in a therapy setting. I don’t completely understand not being able to talk with someone that has been in the group therapy for support. But I’m not a therapist, so what do I know.

As we were talking drippy came up in conversation many times; many, many, many times. The short version is she wants us (mom & dad) to try again to have some type of relationship with drippy. According to my girl, drippy also wants this. Now, she also said she knows that he is not “ready” to try again at this point. I wish I could have recorded the conversation so I could go back and replay what was said. There was no fighting or arguing. I have said before that I refuse to do that with her, but she did not get mean, nasty and she didn’t shut down. Conversation went from therapy to drippy, back to therapy, to life in general.

My girl has a thought in her mind that since she is now 20 she should be at a different point in life. She should be independent, not relying on mom & dad for everything, have money for a car and an apartment and living expenses. I talked again about looking into in-patient places. Like actually look at them, not just talk about them. She gave the typical reasons why she didn’t think she wanted to do that. Family and missing the babies that we have been blessed with, leaving therapy and still having nothing because she can’t work and make money (still not sure where this money thing is coming from – but I have my ideas). I countered each reason the best why I could. I just really want her to consider it.

The conversations that dealt with drippy were the hardest. She wants our approval to be with him, she wants him to be included, she wants to talk about him with us. I don’t know how to deal with that. HE BEAT HER. She defends him and she admitted she knows she does. She said we only know the bad about him and their relationship because that is all she has shared. She wants to talk to us about the good parts, how he treats her (?), how he is what she needs right now and she wants him in her life. She reiterated these thoughts and feelings quite a few times and I don’t know what the fuck to do about it. Right now drippy is holding the trump card, and it’s a red ace of hearts – he has my girls heart whether we like it or not. I don’t mean to make it sound like this is a game and my girl is the prize. It’s just the best way I can explain a really shitty situation. I am scared what this will mean for the future. I am scared choices will have to be made and none of the choices are good. I am scared that the immediate family will pull away from her, more than they already are.

And this is why I just don’t know anymore.

Reality

This is my daily reality. My beautiful girl child has Borderline Personality Disorder. This is what it looks like.

Self harm and this was a mild one

It’s 2020. People dealing with mental health issues are not getting the proper help. I can’t help my own child. It is devastating. It is sad. It is scary.

Struggling

Some days I can find a spot in my brain to tuck away all the emotional bullshit. Today is not that day.

Last night I had a dream that my girl was dead. I don’t know how she died, where she died or any other specifics. I just knew she was gone forever. I was in a car with my mom, an aunt and my grandmother who passed recently. They were all bad mouthing my girl and saying horrible things. I was so upset and I couldn’t get them to listen to me or hear me when I tried to explain that she was a beautiful and wonderful person who was afflicted with a horrible mental illness.

I am exhausted today. Drained and depleted of any and all positive or happy emotions.

Some days I amaze myself

Today I am amazed at how fucking stupid I am. I feel like my world has been stuck in a tornado for the last year. Occasionally, I get to experience the eye of the storm and feel a bit of calm; mostly it’s just the wind spinning me in circles.

When I woke up this morning I made a promise to myself to be stronger, put the girl child out of my mind and get some shit accomplished. I made a list. Not a long list, but still a list. There were five items on my list, I have crossed out three. I’m feeling accomplished. And then I amazed myself…

I had this fabulous idea to make a family calendar for Christmas presents. I would put everyone’s birthdays, anniversaries, special family moments, etc on the calendar. Each month would have family pictures of the person(s) who have birthdays that month to remind us of special times we have shared. I typically have to remind my “adult” kids of relatives birthdays, etc. So a calendar would be perfect – right? I decided to start saving pictures for the calendar. I told myself that I would get an early start, feel really great about what I accomplished and try to relieve some of that pre-Christmas stress.

The sadness hit like a fucking train. Pictures. My girl is in the pictures, so many of the pictures. Will I have more pictures to cherish with her or has that come to an end? Will I get to celebrate the holiday’s with her, her birthday, Mother’s Day? And again, I am caught up in the tornado. My emotions are everywhere. I am hurt, sad, angry, confused…….How fucking dumb am I not to realize before I started that my girl would be in the pictures?

I experienced my two sons leaving home and I did okay. Of course I was sad and missed them. But I was also very happy for them. They found the person that makes them happy and are starting their own families. It’s wonderful to sit back and watch them grow and feel proud about what they are accomplishing. I want to experience that with my girl. I want to be happy she left home and is finding her way, but the circumstances are so insanely different. How can I be happy she is living in a shit-hole city with a hood rat? I want to respect and accept her decision; I can’t. I am terrified for her life. I guess I’m just not there yet. Will I ever get there? I don’t know.

People suggest as parents we should go and talk to a professional about the situation. Okay, I totally agree with that. Tell me how to find one? The professionals that deal with BPD are few and far between, that I know for a fact. They don’t provide therapy for only relatives of BPD patients; they provide therapy for families, which would includes the BPD patient. Our BPD patient has refused therapy. I have talked to other therapists/psychologists for recommendations. No one feels comfortable giving me recommendations because BPD is so……………what word can I use….intricate? Each person BPD patient has some similarities, but also has their own way of thinking/dealing. That is why therapy for families is suggested, but the BPD patient is a crucial element in that therapy.

I HATE FEELING THIS WAY.

I am lost

I don’t even know anymore

It’s one of those days.

I keep replaying the last 10 years of my daughter’s life wondering where I could have done something differently. Why didn’t I realize something seriously was wrong before now? All the what if’s are on a continuous loop in my head.

She came home yesterday around noon time. Our security cameras alerted me to motion in the driveway. I sat at work watching the camera, watching her. I needed to see her face. I needed to make sure she was physically okay. Did she have bruises? Did she have cuts? I obviously couldn’t see all that from the camera. But she was home.

I returned home from work around 4:15. I figured she was in her room wrapped in her blankets sleeping or watching Netflix. I was right. She was asleep. I started dinner, doing the normal daily after work stuff. My son and daughter-in-law stopped over to eat with us (I was trying a new recipe). I went to my girls room to wake her up and see if she was going to eat with us. She did come downstairs. She was pale, looked exhausted and didn’t say much. This was the first time in 6 days that I saw her. She slowly opened up, not talking about the past 6 days, but just the normal banter that happens at dinner. After dinner I stepped out on the porch to get some air and sat down at the patio table. I apparently had dropped my head and was rubbing my eyes/temples when my girl walked out. She asked if I was okay. I was honest and told her no, I wasn’t okay. I seriously can’t even remember everything that was said. It was mostly me talking. Only talking, no yelling, screaming, etc. She told me that within 3 months she would be moving out to move in with the boy and his family. I told her all my honest fears and worries for her. I told her over and over and over again that she would always have a home with us and the door would always be open for her. The conversation was probably 35 or 45 minutes. It was long, it was repetitive, it was emotionally draining. I think it went as well as it could have. I was shocked when she told me she was leaving again that night to go to the boy.

It was a sleepless, restless night. But that is becoming the norm. I stood in the shower this morning and couldn’t remember what to do first. Holding the soap in my hands wondering what to do with it. Every action or motion I make today feels like it drains me just a little bit more. Driving to work I was on autopilot. I think I drove safely. I honestly don’t remember.

I want to be pissed off. I want the anger and rage to take over and push me to the next phase of whatever this is. Is it grief? Is it a sense of loss? What is it that I’m feeling? I want to tell her she owes me thousands of dollars for all the shit I tried for her. All the crystals that help anxiety, the essential oils that help anxiety and depression and the headaches and that help her sleep better, the money on the spiritual healer that she didn’t listen to, the pure sage stuff to cleanse the house and her spirit, the new mattresses and bed linens that had to be replaced because her cat pissed on them (because she doesn’t clean the litter boxes), the new clothes because she lost more weight than she should have and had nothing to wear. I could go on and on. Our savings is lower than ever and I have to pay my school taxes. That’s on me. I was trying to help my girl. All I did was help my girl walk out the door.

Emotional Conflict

As a self proclaimed super mom, there are days/weeks/months/years that I feel like a complete and total failure. I am not looking for a pat on the back or a “but you’re doing great” comment. I’m being honest. I can’t imagine anyone that is a parent/guardian/caregiver/whatever hasn’t felt like a failure at some point. And it’s not so much an outward failure where my kid showed up at soccer practice with no cleats, shin guards, water bottle or ball; more of an inner failure. The struggles we feel daily. The times when we question our decisions and the answers we gave to important questions. The times when I say to myself – I have no fucking idea what I am doing.

As horrid and awful as it sounds, I am having a moral and inner fight about suicide. I feel an overwhelming sadness washed over me the last few years. I have a nagging voice in the back of my mind that keeps saying “what if”. What if I am wrong to try to convince my daughter to stay in this world? How can I tell her over and over again that things will get better, but they haven’t? How can I know what she feels? When she tells me she doesn’t feel connected to anything in this world or she finds it impossible to feel any amount of happiness. Who am I to tell her she has to stay and fight? Am I being selfish in keeping her in my world? Am I being selfish to allow her to continue to feel the daily pain of her life? This feels so wrong to put into words, but I question my decisions daily.

I sob when I have dreams that she is gone, that I can never see her smile or smell her hair when I hug her. But what about her? Is she holding on because she feels guilty? Have I made her feel guilty? She finally has an actual diagnosis of what she has been fighting, but I keep telling her the diagnosis doesn’t define her. I am begging her to get the therapy. I am asking her to give her life one more year to see the change the right therapy can make. But she has to want it, she has to accept it, she has to embrace it. Can she? Will she?

A Jumbled Mind

My mind is a jumbled mess. Unfinished sentences, words I can’t quite seem to find, all floating around making a mess. I thought I had reached my lowest point in dealing with my girl child’s issues. I try and pretend everyday that I am fine. I’m sure I am selling the idea that I can handle it all. I’m not falling apart on the inside and I am certainly not falling apart on the outside. Pretty sure none of that is true. There are definitely people in my life who ignore the signs they might see as I spiral downward. It’s much easier to ignore the bad. And I get that. I really do. But please stop telling me that I just have to put “it” out of my mind. I can’t do that and I will not do that. Because that “it” is my little pink baby girl. A life that I promised to protect and love and support.

The past week has been one of my worst. Not because of any one thing that I can point to, but the culmination of the last four years. At least that is my opinion. When I am dealing with the chaos of living among my girl child’s issues, I have to stay strong. I have to be her support, still go to work, still take care of a house, I still have to make dinner every night, still babysit my grandbaby three or four nights a week, still make time for the other people I care about. I HAVE TO! If I don’t, I fail – right?

As of right now things with the girl child are what I would call stable-ish. I think this is why my body is now “releasing” the stress. She had a job for about two weeks and quit. She has lied about chlamydia boy and seeing him. He has broken up with her on three occasions creating some fairly severe breakdowns. She has had a severe bladder/kidney infection (again) which landed her in the ER for dehydration. The antibiotic made her sick, so she couldn’t/wouldn’t eat and drink. (Side note: She was at the family doc in May 2019 and weighed 131, she is currently about 115. But I am positive she is again smoking weed because I have seen a significant increase in what she is consuming throughout a day.) I finally found a place to do a psych evaluation on her. She had the first appointment the end of July. She is scheduled for a total of 7 hours of testing over a three day period. After all results are combined and reviewed, she should have a better understanding of what her mental health issues are. During the evaluation the doc mentioned she wouldn’t be surprised if my girl child has been dealing with a learning disability that school never picked up on. The girl child promises she will do what is recommend to help herself. She has made these promises before…… So yes, this is stable-ish for our family.

On the physical side, I have had some sort of weird throat thing happening for over a week. My voice sounds very hoarse, my throat doesn’t hurt. It’s weird. About two years ago I was diagnosed with fibro. I deal with it cause I have to. Some days are better than others. This week and last week have been hell. For some reason my worst areas are my elbows, shoulders and feet. Picking up a bottle of water hurts, picking up the phone at work hurts. There is also a “brain fog” that goes along with fibro. Not sure if this is the cause of my jumbled mind or it’s a combination of everything.

I also find myself eating, a lot. And this is something that makes me feel so incredibly awful. Almost eight years ago I had weight loss surgery. That’s an entirely different story. And I was successful. I have never been prouder of myself. I now find myself turning to my old friend food. Food was always there for me. Food made me feel loved. Food doesn’t judge.

The jumbled mind has just been awful. At work I don’t think anyone has really noticed. I have the occasionally stumble over finding a word or remembering a name. I think I’m handling work pretty well. Outside of work I feel like a person that might be described as “slow”. I was at Walmart to get specific items, I even had a list. I found myself just wandering aimlessly having no idea what I was getting, not remembering the list I had and just buying random shit. During conversations my mind just wonders off. My brain derails from the train of thought and I don’t get it back. It’s GONE. I was driving one of my dogs to the groomer, drove past not one, but two roads that I needed to turn on to get to the groomer.

And the worst thing lately is my lack of sleeping and the nightmares I have when I do sleep. I had what felt like and seemed like a full length movie type nightmare where I had to plan my girl child’s funeral. Start to finish. Throughout the nightmare the actual reason for her death was never actually said but the feel was it was suicide. I had to pick where to hold the funeral, what she would wear, what pictures I wanted of her displayed, how her hair should be, how her make-up should be, get her nails done the way she liked them. Details that I never want to deal with or think about again. The way I had to console other people through the funeral and was never really allowed to grieve the way I think I needed to. No one would see what I was going through. I felt so selfish the next day.

A few nights ago I had another horrible nightmare. This time I was holding my grandbaby and was putting her to sleep. She was very small and wrapped in what reminded me of a hospital blanket. Almost like she was a newborn (she is actually 10 months). I was rocking her in my arms to sleep. At some point I realize she isn’t breathing. I scream for my husband. I lay her on a table and unwrap the blanket. She isn’t breathing. Her eyes are just slits, but I can see the beautiful blue color of her pupils. I am screaming for someone to call 911, I call 911. I am on the floor sobbing and crying and asking for help. My husband is the only there and he can’t/won’t go close to her. I go to the table and start CPR. I can feel my mouth going over her nose/mouth to give her breaths. Some kind of EMS personnel are now there and telling us its too late. I won’t listen. I’m sobbing and wailing and the feeling of guilt that I killed her. She died in my arms is overwhelming me in the nightmare. I woke up with swollen eyes and a throbbing headache. I have not told anyone about these nightmares. They were too real. They feel too “close” to share. I feel like they are very selfish dreams. I don’t really know how to explain it. Why was I making a nightmare like these about me? Why am I trying to get people realize what I am feeling? UGH

Deep Sigh…..

Today, I am tired.  The kind of tired that you feel in your bones, in your soul.  It makes my body and mind exhausted.  I woke up this morning wishing it was time to go to bed.  I don’t like feeling that way.  

I realize I haven’t posted about my daughter and her struggles. I thought I had finally found a place to send her for treatment. I was in contact with an admission specialist. I asked all the questions I could think of regarding treatment, doctors, medication, social interactions, etc. We discussed cost, including insurance. I was ready to make the jump, take out a second mortgage to finally get my daughter the treatment. But, there was just this feeling I had. I read the emails from the admission specialist again and again. I reviewed my notes from conversations with the admissions specialist. Was this too good to be true? Or was I just being negative because so many things had fallen apart during this journey.

I can’t explain why I never thought of doing a general Google search of the facility to find if places like this were reviewed. WOW – was I in for a wake up call. Five deaths reported at the facility in five years along with horrible stories from patients that had attended programs at the facility. Now, I totally understand that there are people who will bitch and complain about anything and everything. I took these reviews with a grain of salt. No facility is going to please everyone and was the person writing the review open to treatment or did they fight it? But five deaths in five years???? The deaths really made me nervous. I did more digging, more reading, more digging, more reading…Someone posted a recommendation to search the facility name and the civil law suits against the facility. I did that and found the facility is and has been under investigation surrounding these deaths. It has been fined for not following proper protocol when dealing with suicidal patients. It has been fined for a number of violations. None of the fines can bring those people back. Law suits can’t bring those people back. And I will never know the true circumstances of the deaths. But how do I send my daughter there?

The facility admission specialist kept contacting me about the information she had provided (cost, insurance, etc). I sat down and reviewed the numbers again, with the new information I had from the reviews. I am going to copy the email from the facility, but remove names so I don’t end up in a law suit!

The email reads:

I got the insurance checked in regards to XXX. We are out of network and we would be looking to use the out of network benefits. Since we are out of network this means that we do not have a contract with XXX and we can bill them whatever we decide. Facility name has decided to bill insurance $2,700 a day. Now some insurance companies pay very close to this and those polices we can work with and then there are other insurance companies do not pay any of this, those polices we cannot work with at all. Then there are insurance companies that are right in the middle, where they pay maybe half of the $2,700 a day.

With this being said, your insurance falls right in the middle. The pay but not enough. So we are looking to collect $20,000 upon admission. This $20,000 will over the deductible and out of pocket for out of network and it will also help with the poor reimbursement that we have with this XXXX policy.

Let me know if the $20,000 is feasible and if it is not let me know what is!

After reviewing the numbers, I had questions. After reading the reviews, I had questions. My questions included how long the stay was for, would my daughter be in a hospital enviroment (as I had read in reviews) or actually be in a facility like the ones on the facility website? Here is my first response regarding the length of stay.

The response states: The $20,000 will cover however long insurance authorizes – The length of stay will vary depending on XXX’s individual needs and the authorization from the insurance company.  The authorization process requires review for medical necessity every 3-5 days.  We will do everything we can to advocate on XXX’s behalf and maximize her stay with us. That being said, there are no guarantees on length of stay, however Facility Name will guarantee a minimum length of stay of 14 nights regardless of insurance authorization, and will not request any additional funds for any nights authorized by insurance over the minimum guarantee.

So, I pay $20,000 upfront at admission, plus the facility will get about $1,300 for whatever time is deemed necessary and is authorized. Let’s be honest. We all know that the insurance will approve maybe a week. And that $20,000 gets my daughter 14 days of treatment. Seriously? What can be accomplished in 14 days? There is also a highlighted section on a financial document I was sent indicating after signing the document I agree to keep all financial terms and agreements made between Facility Name and myself completely private and confidential.

So, now what? I don’t know, I don’t know, I don’t know. I just know I’m tired.